tag:blogger.com,1999:blog-5897180056941417516.post2105016439582593710..comments2023-10-18T10:46:43.660-05:00Comments on failure to form: Insurance Won't Pay For Breast Birth Defect SurgeryToddhttp://www.blogger.com/profile/17680883996772468338noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5897180056941417516.post-85126662426114251002009-04-29T13:54:00.000-05:002009-04-29T13:54:00.000-05:00I have Poland Syndrome and when I became an adult ...I have Poland Syndrome and when I became an adult I wanted to have surgery and I was still covered by my parents insurance. They didn't want to pay for my surgery, but after writing a 2 page letter stating how this birth defect affects me emotionally, physically and how it has damaged my self-esteem. My doctor knew how much I wanted this surgery and after being denied by the insurance she had suggested the letter. Shortly after the insurance received and read it, they granted the surgery and stopped calling it cosmetic. Now, I will have to do the same thing with my insurance to have any new surgery. Now, I did all of this 11 years ago. But, if you make a big deal about how you have been affected you really should have no problem getting the insurance to cover it. But, your doctor may want you to wait until you are an adult and have finished growing and physically developing. I hope this advice has been helpful.ltlone95521https://www.blogger.com/profile/01489866937867738801noreply@blogger.comtag:blogger.com,1999:blog-5897180056941417516.post-80098190165507888572009-02-03T00:17:00.000-06:002009-02-03T00:17:00.000-06:00That is so unfair to the child. I too have the syn...That is so unfair to the child. I too have the syndrome yet I do not have health insurance and have no way to pay for it. Knowing what the child is going through she should write a letter to the insurance company to explain her position and her parents should find other cases where the surgery is normally deemed cosmetic but can be used as a correction. Isn't that what basic skin grafts for burn victims are?Melissa Hawthornehttps://www.blogger.com/profile/09170944929495544540noreply@blogger.comtag:blogger.com,1999:blog-5897180056941417516.post-55728516331374373362008-09-19T23:05:00.000-05:002008-09-19T23:05:00.000-05:00I would ask that insurance companies re-evaluate t...I would ask that insurance companies re-evaluate the rationale for providing financial coverage to cancer victims for breast reconstruction and not for victims of poland's syndrome. Reconstructive surgery is to help restore dignity and improve the quality of life. As a victim of this syndrome, one struggle to maintain self esteem and a quality of life. Surgery offers hope that one can be normal. Reconstruction surgery enhances the deformity to appear normal and symmeterical under clothing depnding on the severity. However, one is never normal,as there are both physical imbalances and weakness, muscular and skeletal pain, physical scars and emotional trauma. There are constant challenges in all areas of life. Reconstruction surgery could be a life saving technique that promotes hope for some individuals. It should be categorized as standardized reimburseable treatment.crazeyk2https://www.blogger.com/profile/13707153802186735496noreply@blogger.com